I was the first one really “down” and had real diagnosis from mold, but it wasn’t linked to mold till years later.
As I sit down to write this, even after reviewing medical files in attempt to jog my memory, I still don’t know where to begin. This is why it took so long to start a blog. This time period was so crazy and hectic, I just don’t know what happened when, even with all the dates right there in front of me.
As I was reviewing files, I found the date I had my hysterectomy and appendectomy. It was summer of 2010. So that is where I will begin.
Remember back to the first post of this story. I had been having severe stomach pain with diarrhea and the frequency was rising. At one of my follow up appointments after having Weston, I complained to my OBGYN about this pain. She said that it could be endometriosis. However, the only way to tell is to check via laproscopy which is a procedure done under anesthesia. I talked it over with Ian. I had had a few instances of moderate to severe dysplasia (bad pap smears to put it in layman’s terms) and I wanted nothing more than this pain to go away. I went back in and told the doctor that I just wished for a hysterectomy. We discussed it and it was decided. In July, I’d get that operation.
Two weeks prior to the operation, the stomach/abdominal pain was so severe that I knew I had to go to ER. It was the evening and my dear sister took me. I finally got a CT scan sometime around 2am. I recall my white blood cells counts were off. The next day (because I had been admitted), a hospital doctor informed me that my appendix looked funny. His words, not mine. He said he didn’t know why, but they wanted to observe me a few days. He was reluctant to remove my appendix as I had the upcoming operation. The hospital kept me till my blood levels all read normal. I was told that if my appendix looked abnormal during the hysterectomy, they would remove that as well.
Two weeks passed without major pain (aside from the daily pain). I went into the hospital to get my hysterectomy. After operation I was told they also took my appendix. Blanket diagnosis before biopsy was “your appendix was black and shriveled up.” Basically, it had up and died. Later, when I got results, it was shown that I had chronic cervicitis and chronic appendicitis.
Later that year I was diagnosed with adult onset asthma and had chronic bronchitis. Sometime later down the line, I asked Ian if there was a chronic itis disease. Much to my surprise, we learned there IS such a think as “chronic itis.” It’s called CIRS or chronic inflammatory response syndrome. CIRS is deserving of it’s own post. Own website actually, so I won’t expand on that here.
Mold had stolen the preschool years of our children and now my ability to even have more kids.
This ^ is me post op resting at Ian’s parents’ cabin. I have a very high tolerance for pain. Even ripping out my innards, I was all set to start grilling!
The operation helped my pain and alleviated my diarrhea somewhat/mostly. I don’t remember. But I’m glad I had the operation done. First, I was period free to deal with the ensuing madness that became our “lives.” I have that in quotes because, really, it was no life at all. We were merely surviving.